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Modeling the distress of spousal caregivers of people with dementia
Abstract : The progressive mobilization of spouse caregivers who take care of a person with dementia (PWD) can lead to situations of distress.
The current study sought to investigate the influence of the characteristics of the caregiving context on spousal caregiver distress.
125 spousal caregivers participated in this study. The characteristics of the caregiving context were assessed using questionnaires. We examined a moderated-mediator model (Step 1) in which we hypothesized that PWD and caregiver characteristics and dyadic determinants contribute to spousal caregiver distress. This model was compared based on the age at onset of the disease and the gender of the caregiver (Step 2).
The model revealed that poor self-rated health and a lack of family support accentuated spousal caregiver distress, whereas the feeling of being prepared and level of confidence decreased spousal caregiver distress. Moreover, the quality of couple adjustment affected spousal caregiver distress, and this effect was mediated by the severity of the PWD's symptoms. Regarding the age at onset of the disease, the path between Couple Adjustment and the Care recipient's impairments was more important for caregivers of person with early-onset dementia (PEOD). Female caregivers who reported poor self-rated health experienced greater distress.
It would be interesting to create a support program that would incorporate these three areas of intervention regarding the progression of the disease: first, "preparedness modules"; second, "dyadic modules" (especially for caregivers of PEOD); and third, "family modules". Specific attention should be given to female caregivers who report poor self-rated health.
Keywords :
psychological model
early onset Alzheimer disease
dementia
Caregivers
spouses
late onset Alzheimer disease
Mesh:Aged
Mesh:Logistic Models
Mesh:Independent Living
Mesh:Humans
Mesh:Female
Mesh:Dementia/psychology
Mesh:Dementia/nursing*
Mesh:Caregivers/psychology*
Mesh:80 and over
Mesh:Adaptation
Mesh:Psychological*
Mesh:Surveys and Questionnaires
Mesh:Stress
Mesh:Psychological/psychology*
Mesh:Psychological/etiology*
Mesh:Male
https://hal.univ-lille.fr/hal-02531006
Contributeur : Lilloa Université de Lille <>
Soumis le : vendredi 3 avril 2020 - 12:40:13
Dernière modification le : mardi 3 novembre 2020 - 10:26:02
Contributeur : Lilloa Université de Lille <>
Soumis le : vendredi 3 avril 2020 - 12:40:13
Dernière modification le : mardi 3 novembre 2020 - 10:26:02